I m Mortal

My rants & experiences while coping with my life, college, work , an autoimmune disease called Dermatomyositis & an eye disorder called Optic Nerve Atrophy

Sunday, November 17, 2013

100 miles on the wrong side

So I recently moved to a new organization. Change in places of work can be quite stressful sometimes. Fortunately for me, I was working so hard past few months that it didn't seem to matter much. My new organization seems to be nice. Looks like a good work - life balance which I was really hoping for.

My last doc visit and blood tests were a disaster. My CPK was around 2370 ! My initial response was of panic. My CPK levels have never been this high. Not even when I was bed ridden or using a wheel chair. I was very skeptical and was expecting the worse. But after the initial shock wore off. I took it in my stride and continued work, life as normal. It feels bit weird when friends at work / outings discuss about their problems. As a DM patient, you need to go through all of that and plus these health woes. Also if you had this disease for a really long time, you tend to forget / ignore health issues sometimes for other "worldly" problems!

I had noticed the fatigue had started affecting me, especially early mornings and late night. Fortunately I feel its been a while now. Almost a month and without much trouble. So feeling a lot relieved now. Change in meds was expected, but didn't affect my daily activities as such. But working and managing people around can be quite taxing along with coping with DM. Sometimes it feels like I am driving a car very fast on the wrong side of the road! Catching up with music really helps though.

My eyesight seems to be affected somehow. I have always felt uneasy with bright light and quality of vision since my relapse last year. But just haven't found time to visit my ophthalmologist whose clinic is just outside city limits. I might consult a new doc later next week.

Last week I had a small road trip with my pals. I tried out para sailing on the beach. It was real fun. It really feels liberating when you are out in the sea having a glimpse of the vast scenery hundreds of feet above water. 

Para sailing

 I really required that break last weekend. Since last couple of months, I had been so busy with work and other commitments that just couldn't find time for myself. Planning for a short overseas trip sometime next year hopefully!

Right now I sometimes get the feeling to just relax for couple of days at a stretch until all the fatigue goes away! Need to alter my lifestyle to catch up on that "resting time".

Ciao n Peace.



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Monday, July 22, 2013

Edge Cases

It's been raining heavily in Mumbai past couple of days. I have been lucky to avoid most of the harrowing times that other office goers go through since I have been stuck at office most of the time past 3 weeks. Its been crazy since I spend most of the time at office and even after reaching home have to check on work sometimes.

Just waiting for the current project to be done with. I just hope I can last next 2 weeks. Since they are going to be very critical at work and also for my health. Health wise I am almost at the point of losing it all. The fatigue and weakness that I was experiencing yesterday was phenomenal but I am still "hanging in there" like always. A days rest today really helped to catch up on my sleep. I was sleeping till almost 2:30 PM today ! So much for enjoying weekends ! Had a good time with friends at night today. So getting ready for the monday morning blues ! Unfortunately there is no time to waste so have to catch up work pretty quickly tomorrow. No time for friendly banter or water cooler "talks" with other ppl for now.

Hope DM reads this post and stays away for a while!

Ciao n Peace.
 

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Saturday, March 02, 2013

Tough times

So its been almost two months since I rejoined work. Initially I was able to cope with the work timings and had a nice routine going on for me. But since last couple of weeks I am back at it again. Started feeling tired like, all the time. I was really worried I wouldn't be able to handle work any more. But somehow managing to scrape through. Work has been very hectic for me. I had to work on weekends couple of times. 

Its tough getting back on the job. I had already refused few projects due to work location and was running on thin ice so had to comply with my current project demands. Hopefully the worst is behind me. I feel better when I have taken rest or had enough sleep (9-10 hours). But sometimes it becomes difficult with all the chores and office work. But hanging in there. Not much to say really other than work,rest and work again !

Ciao n Peace.


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