100 miles on the wrong side
So I recently moved to a new organization. Change in places of work can be quite stressful sometimes. Fortunately for me, I was working so hard past few months that it didn't seem to matter much. My new organization seems to be nice. Looks like a good work - life balance which I was really hoping for.
My last doc visit and blood tests were a disaster. My CPK was around 2370 ! My initial response was of panic. My CPK levels have never been this high. Not even when I was bed ridden or using a wheel chair. I was very skeptical and was expecting the worse. But after the initial shock wore off. I took it in my stride and continued work, life as normal. It feels bit weird when friends at work / outings discuss about their problems. As a DM patient, you need to go through all of that and plus these health woes. Also if you had this disease for a really long time, you tend to forget / ignore health issues sometimes for other "worldly" problems!
I had noticed the fatigue had started affecting me, especially early mornings and late night. Fortunately I feel its been a while now. Almost a month and without much trouble. So feeling a lot relieved now. Change in meds was expected, but didn't affect my daily activities as such. But working and managing people around can be quite taxing along with coping with DM. Sometimes it feels like I am driving a car very fast on the wrong side of the road! Catching up with music really helps though.
My eyesight seems to be affected somehow. I have always felt uneasy with bright light and quality of vision since my relapse last year. But just haven't found time to visit my ophthalmologist whose clinic is just outside city limits. I might consult a new doc later next week.
Last week I had a small road trip with my pals. I tried out para sailing on the beach. It was real fun. It really feels liberating when you are out in the sea having a glimpse of the vast scenery hundreds of feet above water.
I really required that break last weekend. Since last couple of months, I had been so busy with work and other commitments that just couldn't find time for myself. Planning for a short overseas trip sometime next year hopefully!
Right now I sometimes get the feeling to just relax for couple of days at a stretch until all the fatigue goes away! Need to alter my lifestyle to catch up on that "resting time".
Ciao n Peace.
My last doc visit and blood tests were a disaster. My CPK was around 2370 ! My initial response was of panic. My CPK levels have never been this high. Not even when I was bed ridden or using a wheel chair. I was very skeptical and was expecting the worse. But after the initial shock wore off. I took it in my stride and continued work, life as normal. It feels bit weird when friends at work / outings discuss about their problems. As a DM patient, you need to go through all of that and plus these health woes. Also if you had this disease for a really long time, you tend to forget / ignore health issues sometimes for other "worldly" problems!
I had noticed the fatigue had started affecting me, especially early mornings and late night. Fortunately I feel its been a while now. Almost a month and without much trouble. So feeling a lot relieved now. Change in meds was expected, but didn't affect my daily activities as such. But working and managing people around can be quite taxing along with coping with DM. Sometimes it feels like I am driving a car very fast on the wrong side of the road! Catching up with music really helps though.
My eyesight seems to be affected somehow. I have always felt uneasy with bright light and quality of vision since my relapse last year. But just haven't found time to visit my ophthalmologist whose clinic is just outside city limits. I might consult a new doc later next week.
Last week I had a small road trip with my pals. I tried out para sailing on the beach. It was real fun. It really feels liberating when you are out in the sea having a glimpse of the vast scenery hundreds of feet above water.
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Para sailing |
Right now I sometimes get the feeling to just relax for couple of days at a stretch until all the fatigue goes away! Need to alter my lifestyle to catch up on that "resting time".
Ciao n Peace.
Labels: Dermatomyosit, Fatigue, High CPK, Para sailing, Work
posted by Prasad @ 12:26 AM
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