I m Mortal

My rants & experiences while coping with my life, college, work , an autoimmune disease called Dermatomyositis & an eye disorder called Optic Nerve Atrophy

Tuesday, May 29, 2007

Say Cheese

I had my doc's appointment today. Due to some reasons he had arrived late, so the receptionist told me to come at around 8:30pm. Unfortunately all appointments were delayed due to some reason. Finished up at 11:30 !!

Doc visit was nothing out of the ordinary. I didn't have any complaints as such. Just the usual cpk, liver enzymes story. My stamina seems to have slightly improved since last couple of days. He prolly didn't change the meds. Btw this doc was the homeopathy one and not my rheumy. I am not too keen to go back to rheumy coz dun want to restart any of the prednisone / methotrexate treatment just for the high cpk. Overall I feel pretty good n can do everythin without much troube. Like climbing any number of stairs, walking , working , studying,... So guess I should be fine.

My doc had some assistant docs today. He also wanted to capture the calcinosis on his camcorder. Since last few days , the calcium deposits have reduced by a great deal. They have turned lil black, but the white calcium is almost gone !! So here I was , gettin my snaps taken & a short Q&A session with me was recorded. Funny thing was he framed the questions such that I had improved in those areas. So I was answering questions with "Yea its improving , better,...". At the end of QA he asked me about my eyesight , to which I replied that there wasn't any improvement. Hope that didn't ruin the video :P But he did say that all tests will soon be within normal limits & that I shouldn't worry about anything.

Well so much for a satisfying appointment. I was in there for 25mins. 10mins he was discussing the earlier case, about 10 mins recording the video & 5 mins checking out my experiences in the last month and a half!!


Ciao n Peace.

Monday, May 28, 2007

Family Guy

Finally we had a family get together! It was great to meet everyone after a long time. I drove down my parents to my uncle's place. We took off at around 7pm. I am always bit skeptical when I drive with my mum. She is not too enthusiastic when I drive at high speed :) However the situation was avoided coz there was lots n lots of traffic all round. For just about a 15km stretch we were stuck in traffic for about 1 1/2 hrs. We reached there at about 9pm. Food was great, we left for my aunt's place at 'round 11.

My sister n her husband returned home , while I took my parents to my aunt's place. We stayed back for dinner the next day. Aunt had prepared all my fav dishes. It was really some quality time I got to spend with my family these 2 days. Glad now that I didn't go for the trip with my friends for weekin'. We left at 9pm coz I have an appointment tomorrow. Again there was lots of traffic while drivin back. Wonder what the problem is ... there is traffic throughout the day these days. Really bad time driving down the highway.

After returning home , my head felt little heavy. Had a lil hair oil massage ,head feels lighter now! Goin to sleep soon, its 1:15am already !!


Ciao n Peace.

Thursday, May 24, 2007

Lock, Stock & Two stranded bros

I have to write this down. "M" had come to my place to learn some topics for his system audits exam due in first week of June. In his words, I was the "IT guy" who could help him out. So I did.

Now me playing a perfect host , invited him for lunch coz have few days off now. Later after teaching for about 2 hours, I decided to get some snacks from a nearby fav eatery. When I came back , he must have heard me coming. He came out to tell me about something , n closed the room. Now the room usually doesn't get locked. But he must 've pressed the lock button on the inside or somethin and closed the door. So here we were stranded outside the room. I searched for the room keys, but as usual they were no where to be found. Later found out they were in the room itself lying in a dusty corner of my drawer.

So after gettin locked out, I went to a nearby accessory shop. He told me he couldn't help me out here. So later found a key maker. Brought him home, after about an hours work, he finally opened the door. I was left 150 bucks short & my ac , computer were switched on. The room was freezing cold , so that cooled off some steam!!

Phew never again shall I trust anyone with my room! Have to keep a close watch, never know when you will find a more dumb person than yourself! lol Not implying "M" is dumb but still you got to think before you leap. Anyways I have been known to do more stupid things than that so never mind.

Just had dinner with P & S. Food was good. Different n less junkie than normal stuff !


Ciao n Peace.

Wednesday Night Blues

Well two incidents stung me hard last night.

Firstly the realization that I couldnot run for more than 5 mins. Over the years, like I have said my muscle strength has improved by a great deal. I usually donot practise running outside. Not sure why, but something to do with my speed n running action I suppose. So I never really counted time when I used to run while playing the occasional game of cricket,volleyball,... Y'day I decided to count the time. What I found was truly shocking for me. After about 2-3 mins my feet started to get really stiff. By the end of 5 mins, there was a lottt of discomfort. So I just gave up on the running. I have vowed to improve my running capacity & atleast be able to run 15 mins. And to think of what I dreamt in Jan about running a half marathon !! I would prolly stop by the end of the first mile.

Second incident hurt me more. Liverpool lost to AC Milan! Milan won 2-1. I was sorely disappointed because Liverpool dominated the first half and at the end of the half Milan scored a lucky goal. Just when I was thinking that the reds will win this time too surely. End of the match was like deja vu for the red fans. Trailing 2-0 , Kuyt scored at the 89min. But Milan veterans saw to it that there was no repeat of Istanbul.

Disappointed but not down n out!


Ciao n Peace.

Wednesday, May 23, 2007

Playing the spoilsport

I got a call from my friend on sunday. Our group of friends had planned a small trip on the weekend. Now me being me informed them that I couldn't come coz I had an appointment on monday !! You just had to see their reaction. All of them burst with choice words for me. Some said they had waited for my semester to get over n had delayed the trip by a week. While others told me stop being a lazy a**.

Now they seem to be right about the last part, but I though they just didn't listen to my side of the story. I took the docs appointment almost a month n a half in advance. Also I might have to start the internship soon , so might not be able to visit the doc later. But they just wouldn't listen. H & V just ignored me during the drive back from DDs !!


My cpk & liver enzymes are at an all time high,cpk at 507 whereas the liver enzymes were almost twice the normal limit ,when I checked them last time. Wonder whats goin to bring them down. Muscle weakness, n other complaints I had last month have stopped now. After good nights sleep since past few days. I have also started exercising a lot. To build up my stamina. Lets see what the doc has to say about the high test levels this time 'round.

I always wonder about this part of DM. Like I have always said, since last 10 years my muscle strength ,stamina has improved by leaps n bounds. But my CPK has never been normal, just once for a period of few months I guess it was under control. Liver enzymes I can understand are prolly high bcoz of the junk food I consume! Anyways I guess I have to stop wondering about such things now n move on...

Finally the Uefa Champions league finals is here. Hope Liverpool beat the hell out of AC Milan this time too!! The 2005 final was the best match in the history of UEFA Cups. Waiting eagerly for the kickoff at 12am tonight!

GO LIVERPOOL GO !!


Ciao n Peace.


Monday, May 21, 2007

5:45

Well 5:45am, thats the time I slept on Saturday. Its been a while since I slept before 2am since last month. Semester exams have been too hard this time around. I couldnt go to bed before 3:30 - 4 on most days. I am so accustomed to sleeping at such late hours that even after having a day off I was awake till 3 yesterday , just couldnt sleep !

Finally exams over , n the next "busy phase" might start next week. I have to complete 1 year internship before finishing up with my Master's Degree. Also have classes on weekends. So its goin to be double whammy this year. Hope I can juggle things around like always.


The new Spidey movie was okay. Not really great. I liked the Batman begins movie more than any of the crap comicbook hero movies released in last 2-3years. FA Cup final between ManU & Chelsea was an anticlimax to this exciting season of European football. Spanish league matches might go down to the wire. Cricket is gettin so boring, hardly care to watch it. Tennis is Fedrer Vs Nadal till the end of French open, then Fedrer Fedrer Fedrer !!! F1 is pretty exciting but with no Schumi this season , current driver rivalries just dont match up to the Alonso Schumi fight. Looking forward to some movies next week on, firstly pirates of the carribean final part, shrek 3 has got pretty okaish reviews. Waiting for Bourne ultimatum to release, its goin to be an exciting third part.

Health front looks pretty bad right now. I am so stressed out since last 2-3months that hardly got any time to look after my health. No workouts makes Jack a dull boy. Really have got to shape up before resuming work. Else I am on my way to become a fatty not by prednisone or by choice :) (person on msg board signs off with similar line :D). Havent really gone out to dine or partyin since last couple of days. Gotta shape up n go out and about. Personally I will get a boost once I get a good nights sleep !!! Plannin to sleep through 2-3 days now. Havent returned couple of people's calls since last few days. They must be really mad by now.

Also have to buy a LCD display for my desktop computer. I was thinkin why waste money on a lcd tv , when I can get a lcd monitor+tv tuner card for half the price! Might go shopping tomorrow. Also have to meet up with friends at DDs, been a long time !


Ciao n Peace.

Saturday, May 05, 2007

Stressed out !

Since last couple of days I am completely stressed out. I have been sleeping at around 4am since last month. Wonder when this is goin to change. Might have to continue this schedule till May 19. My semester exams are scheduled next week. Hope I have two good weeks now!!

My eyes are getting tired quickly. Often have to splash some cold water, try different things to keep myself goin on. I want to have a real good sleep. But hardly get any time to have continous eight hours sleep! I was hardly off the desk yesterday. Might be the same today too !

About DM, doc hasn't changed any meds. I thought as if he didn't listen to me properly. I had complained about muscle,back pain, fatigue,low stamina, lil rash starting to creep up (might be the sun) Hope I feel better next few weeks. Need all the strength I can get!

Hoping for the best for the next few weeks !!


Ciao n Peace.