My Test results , DaVinci Code & Big DoGG

My Test Results:
I will start from where I left off in the earlier post. I had just finished my dinner. I went to the car park to get my blood test reports. Was bit excited , felt that this could finally be the day when my cpk could be in the normal range!!

Was pretty disappointed...My cpk is HIGH. At the moment it is 449(Normal:upto200). My SGPT,SGOT was high by a lil margin ..was round 50 n normal is 40. These are liver function parameters...So I should prolly cut down on fried food n chicken :P It's been a long time since my cpk was normal. My Cpk has remained high since 9 years now. Just for a brief period (2-3months) in 99 it was within acceptable range.


Big Dogg:Ok I committed a very stupid mistake yesterday. Told my friend whos a health freak that I would accompany him for his morning jog on weekends. I was Gung Ho about my fitness yesterday. But I guess felt weak bout the decision today mornin. He called me up twice , but I dint accept his call :P He later came home at 7:30am & rang my door bell for a real looongg time. Damn! I had to get ready n go for the jog.

He had brought a gal friend. Now I really dont have ny problems while joggin with more than 2 ppl. So what if I cant keep up with em !! But the problem here was that she had brough 2 big doggs. Shes some sort of baby sitter or somthin ....for dogs :P (mebe I should call here dogsitter or somethin) !!! We ran for like half n hour...I was terribly exhausted. Hadn't worked out for like a month now.

We had some sort of juice at the beach. Some kind of health drink prepared by some senior citizen club. It tasted good.(slurp!) Heaven. After that she handed me one of the dog , coz my friend had gone to bring his car out of the parking lot. I would have volunteered for the drivin thing .. but my friend was gone in a jiffy.

Now I must say that dog was HUGE when I stared at him while sitting. As soon as she handed him to me, he really came over me!!!! It's not as if I hate dogs. I luv em. As long as they are not as big as my kid bros. I simply stared at him , as he offered me his 2 paws! She startled me by screamin at me. She told me to kick his BALLS!!!:P What the ...... Dint understand what she meant ...I dint want to destroy future generations.................................of the dog!!:P
She shouted at him n it somehow must have pacified the dog or somethin...
I was standing there, acting as if I had to find a loo pretty fast :P


DaVinci Code:Thats prolly the 8th/9th movie I'm watching this week!!! Record of sorts!!
It was an AWESOME movie!! I had read the book. So found it really hard to miss. With Tom Hanks n more over Audrey Tautou ;) It's one of the perfect book transformed to movie kindof movie :D First on the list might be Godfather n LOTR fcourse :)


Ciao n Peace.

My DM Story

I am transferred to the Documentation department for coupla days now. Not much mind scratching work here. Just need to document software prepared by the company.

Right now , I am not too busy , so thought of writing my DM case history. It would be helpful to me , if i forget about the case history EVER!. The thing is , I might have lost the med case history papers. Or will have to search it at my parents place. So thought of jotting down whatever I remember. Here goes...


Worst phase :
Between February-March 9 I was suffering from stomach upsets , vommiting n had grown weak. None of my docs could diagnose a particular disease. On 10 March I had severe convulsions and I slipped into a semi conscious state. On 16 March according to my docs my situation grew very serious. Had servere convulsions. For about a week I was in a coma. Now I dont remember the exact date , but around 28 I recovered from the coma. Till then I had not been diagnosed as a DM patient.


Getting diagnosed with DM :
When I recovered from the coma , I thought the worst was behind me. I couldnt see anything or walk after my recovery. Slowly I began to improve. By 15-25 April I think I started to walk some distance. Soon I was discharged. But within few days , my condition worsened. It so happened that my doc was out of town. So I had to take medical opinion of a neurologist.

He had me admitted to a hostpital. I was put on a tube , coz I couldn't eat anything , I used to spit my saliva out , coz I couldn't swallow it sometimes!! I was in a real bad shape then. Lot of muscle wasting all around. Then I underwent muscle, skin biopsy. The doc then diagnosed me with Dermatomyositis. I was put on a high steriod dosage , through IV for first couple of days. I never knew I would have to take that awful bitter prednisone for next coupla years !! It was really bad. Made me sweat like crazy n the other side effects I came to know , wayyy later. Awful drug anyone would say. But it helped me restore my muscle power , slowly got my eyesight back.

By the time I was discharged from the hospital , it was june. Just before that they put me on a gastro tube since it had been 2 months since i had that tube through nose/mouth. They puncured the abdomen area n put through the tube. They told me that it was hygenic , n could be put there for more days than the nose tube.


Some improvement atlast!! :Soon it was July, we were looking for a physio therapist , coz my situation had hardly improved. I still couldn't lift my neck ,couldnt get up n sit on my own. Forget the other routines. My family took great care n I can never forget that time. Just reminds me how much one can love n take care of a person.

Anyways coming back to the physio therapy issue, I did get an awesome phyiotherapist. Later on she became sort of a Mentor for me. Within few weeks she made me sit on my own , which was a great achievement then!! Soon she made me independent of others. I am thankful to her to this day. Without her help I wouldn't have gone this far.


Yet another diagnosis :PSoon it was october...I had not started walking yet. It didn't concern me much , coz my other muscles were developing by a great deal. The only concern then was a low grade fever that I had for like 15-20 days. Soon my family thought there was a need to change my doc. Coz it had been a month since I was getting low grade fever in the evenings.

My new doc was a rheumatologist. He started me with a medicine , that stopped the fever immediately.(dont remember the name now ,will have to look into old prescriptions).
I had to take a liver biopsy. The liver biopsy couldn't prove what he was hoping to diagnose me for.
It was a disease called CytoMagello Virus(CMV)!! . Anyways it didn't affect me much. In my mind I stuck with the DM diagnosis. Since he had hardly changed my medication ,just the pill for the fever, I dint care.

My Great Recovery :Now every patient goes through this 'great speedy recovery' stage. I too went through it. In the first week of december. I walked with the help of walking splints. These were attached to my legs , holding them , giving support so I could walk on my own. I walked for the first time in 6-7 months!! Never felt better. Soon I had that 'speedy recovery'. A month before my school days were goin to restart , I visited my school for the first time after an year. I missed one year of education. Dint affect me much. Was bit worried though coz I couldnt walk on my own . Needed support now and then. But those worries vanished , as soon as school started , I improved a lot . I could walk on my own. I used the elevators coz my class was on the third floor. There wasn't anything much of note those days that I can write about. Nothing serious or different. Same old stuff. First few months of school I enjoyed the most.

I might be the only student in my class then who enjoyed attending school , lectures :) I used to attend all the lectures even during exam time, when most of the class used to bunk lectures. My grades were pretty good. I completed my school course in 2000 with awesome grades,marks.


My college Days :I enrolled myself for an Information Technology course later. I couldn't do engineering studies , cause the practicals were too much of a strain. My college days were great. I got my driving license in 2002 when I turned 18!! That was a great moment of my life coz I love driving cars. I graduated in 2005. Now I am pursuing a post graduation computer applications course.
During my college days , the only problem I had was that I was diagnosed with optic nerve atrophy in 2005. I can't see with my right eye. Can make out shapes,colours nall . But can't read anything not even the big letters!!

That was a bit of a let down. But other than that life has been too good. Awesome in my words!
My driving still continues...though I do play outdoor games like cricket,volley ball, soccer I'm not too good in those. Get beaten by most of my fellow friends !:P It's not that I cant run or react fast enough. It's just because I cant see with my right eye n have ot depend on my left eye too much.
But still I enjoy spending time playing such games than sitting at home n watching movies n reading books.



So thats it. That was my DM story . This has been a long post I guess. I was wary of blogging earlier , dunno but it helps in some way!! Oof enough of this for now, Gtg. Reading all these things reminds me of a book I read before 'Tough times never last , but tough people Do!'


Ciao n Peace.

My Shutdown

I had enough rest since friday , coz I finished my semester examination n I haven't gone to work since then!! Still feeling bit tired. Must be all the stress of last week.

Now my boss is going to be mighty pissed on thursday when he finds out I haven't been to work for 1 week. A lazy ass that I have been since 2 days , I totally forgot to buy meds for 2 days now!! Med shops closed today , so will wait till tomm morning. Rather than driving 50 mile to the next shop. Just hope that doesnt affect my tests on wednesday by much.









The good thing is I turned off my cell phone since yesterday !! I thought of shutting down my daily routine system for next 3 days. Will restart it on thursday. I will just rest now. No more calls from work.

I will prolly go for a movie today/tomm...might watch Da Vinci Code !! Lets c...if i get tickets fcourse ! Just chilling now. Eating chips,fries n drinking Mountain dew :)

Watched coupla movies n football matches that I missed last week.
The Champions league final between Arsenal n Barcelone was Awesome ! So was the FA Cup final between Liverpool n West Ham. I had just watched bits n parts of those matches till now.

Hoping to meet some old friends tonite. Hope everything goes as planned !!

Ciao n Peace.

My Big Screw Up :(

Aww !! I'm feeling awful right now. Just came back after appearing for my Mathematical theories paper. Messed up big time!! Might have to repeat the paper again next semester :(( or mebe not.....will have to check when results r out. Mebe it was due for sometime now. .. Been aloof about studying for couple of months now. Although I'm a top scorer from my comp applications class , I'm finding it difficult to concentrate. Mebe its coz of work..dunno. Will have to take some firm decision regarding work n studies , once results are out. Just 1 more examination remaining. Hope it goes fine.

The only good thing happening to me since 2 days was that I have got work-leave authorized from my boss. So I can now relax from Monday-Wednesday. Gave a lame excuse , told him I had to carry out some tests in a hospital outside city !! Wasn't really expecting he would grant me leave. Really surprised !!

Anyways , I do have to carry out blood tests from the local pathology. Cpk , liver functions nall. Hope everything would be normal this time !! Atleast the cpk level. I had stopped checking my CPK level since 6months back. My CPK level has been high since 9 yrs now(since 97). Just once for about 2-3months it was below normal levels (that was prolly in 99) !!

The only thing I'm looking forward to next week are the blood tests. I have been doing normal stuff for like 6-7 yrs now. Still dunno what makes my CPK shoot up. Really confused sometimes. Docs are not too worried. Just keep changing medicines. Even i'm not worried , just the sort of thing that remains in the back of my mind.

So I prolly wont be going out this weekend . Thinking of lazing around in my room for 5days!!!!
Might catch up with some movies on dvd. n watch all those Scrubs episodes that i missed !! The option of going out of town is enticing. But I guess if I do that then I might be tired which would prolly mess up my cpk results.

I had thought of posting next week , 100 things bout myself :P or something. But was really pissed off today. I think I might miss work too. Yeaaa !!! .I should go to sleep now!!! Have hardly slept last week. Been sleeping at 4-5 am n getting up early for exams!! Wooff me goin 2 sleep now. Really tired ! Screw studies , screw work !

Ciao n Peace.

My First Post

I m mortel
Wow my first words in blog world. Well I finally decided to create a blog , on my dear friend's insistence. I have been commenting on everyone's blogs n found it amusing. But I guess this experience will make me wise n I will prolly think twice before posting crazy $h*! on other ppls blogs :P

Btw I am 23 yrs old. This blog is about my experience with DM n other stuff(ie my life).
I was diagnosed with Dermatomyositis in 1997. I have been on meds since then. I can say "I'm in in remission" now. Coz I can do all the stuff that my crazy friends can do. Like going for real long walks, trekking(fell down couple of time while jumping thou!), playing ping pong (the only game I dont suck at now) ,pool n wt not...

Still I do have some DM effects over me - like calcinosis(i hate tht stuff) , diminished vision(not bcoz of dm, but optic nerve atrophy) , high CPk levels (I know still I count myself in remission state) n lil weak bones(they hurt hellofalot when i fall down or hit some1 :P n IM goin to do just tht if u guyz r goin 2 post silly comments) .

But meds r on an all time low n that makes me happy. Post DM life has been good. I m doing a Post graduation course in computer applications. Work seems ok.

Mann now I cant think of nything more to add. It was a very stupid suggestion 'Ni' (I have sworn not to write ny1s name here). I cud have never completed 1000 words!!! Prolly not even 200 :P Do count all the words n let me know , if i crossed 1000. Ur not goin2 get ny beer party nyways. I hate booze :P

Enuff for now I guess!! I will try to come up with 1000 things about myself in my next post...or make it 100!! Now I better go n study I have n exam tomm!!!! Have to study somethin really fasst now!! U n ur stupid suggestions.. :@ !!!!!


Ciao n Peace.