I m Mortal

My rants & experiences while coping with my life, college, work , an autoimmune disease called Dermatomyositis & an eye disorder called Optic Nerve Atrophy

Monday, April 15, 2013

Work Update

So it has been almost 3 months now, since I rejoined work. Things are looking pretty good. At least I have regained my confidence that I can work coupled with rest on weekends. Yes, it leaves me with hardly any time for other commitments. But that is something I always should have prioritized earlier as well.

So in this short time, I have already worked on 2 projects and helped a ton of people. Just can't believe what was supposed to be a temporary thing to help me get started, has helped me immensely in my professional life.

Working with DM is not an easy task like say climbing stairs :P But really helps with the satisfaction at the end of the day, of having accomplished something important. My work profile is such that it always ends up with lot of stress, long working hours, more communication with people compared to others in the team. But this time around, I was up for it and tried to keep stress levels low and that helped me some what to get into the "groove".

Health wise, I have been able to recover quite well. Usually after work, I feel a lot of fatigue. But ample amount of rest, music, playing guitar, yoga / meditation has helped me some what. I have observed bit of muscle wasting and scared of it, but doctors aren't too worried about it. I might have to do some physio therapy or exercises on my own. Since my current work place is pretty far from the main road and since some times the elevators don't work here! Yes I some times climb almost 3 floors ! So I have started driving down to work. It's just a 15-20 mins drive and get to park very close to the office. But that doesn't help with the exercises bit. Since taking a walk after reaching home is kind of a power drain. But climbing three floors is almost like punching in the stomach ! Leaves you breathless for a while. Need a good bit of chocolate bar & coffee to bring me back to my senses !

Enjoyed my birthday last week and had a great time with friends at a barbeque place near by. The food was awesome and now worried about putting on weight ! Since been to the same place twice last week :) Planning for a road trip some time in coming weeks. Only if I am up to it. Two of my very good friends haven't been to any road trips since Dec, 2011 after which I had the relapse. We had been to a beach resort then for snorkeling / scuba diving & visiting old forts and watching dolphins in the sea ! Hope to plan something as exciting in coming days.

Ciao n Peace.

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Thursday, November 01, 2012

Stormy Times

This week the super storm "Sandy" that hit the US & today "Nilam" that hit Tamil Nadu in India were in the news for most days. I can't imagine how horrific it would be to be in midst of such storms. My prayers are with everyone affected by them.

This week I did travel a bit, after the adventures of Thursday I was tired for about a day or two. But still managed to go for outings with friends. Past couple of weeks, I was trying to lay low, since I often get very tired after going for such outings. But this last week, just couldn't avoid all those invitations. I drove a lot and really felt great after the drive. I also had to visit my native place last week, but I had to cancel out. Since I was not feeling super confident last week about travelling across states and doing all that flying around and  road journeys. Most of my family was present for the occasion, guess will have to wait for it till next year. Have another dinner invitation on Saturday, trying my best to somehow dodge this invite, but probably will have to make this one last trip.

All the travelling and outings has taken a toll on me. My diet plans have flew out of the window. Since last 2 days was feeling very uneasy and it eventually led to that panic attack kind of feeling. Most times of the day I feel pretty ok to do everyday stuff. But when I get into that "panic attack" mode (don't have better words to describe it), I feel very weak and need to eat and drink a lot to get out of it. Maybe it is something to do with my eating habits or I don't know. Need to ask my doc about it. Mostly the doctors don't reply to such queries and just tell me that things will be fine after the change of dosage.

Been exercising pretty regularly, and do need to see that physio  therapist asap now. There is no way to check muscle wasting, since my hands,legs are pretty thin since my DM diagnosis. But my weight reduced by about 4 kgs. Will need to keep a check on the weighing scale. I rarely ever check my weight, since its usually constant.

So last week saw couple of movies - Chakravyuh & Chittagong. Chakravyuh was pretty bad - very weak storyline and horrible acting by couple people. It was based on the naxalite movement in India which according to our PM is the no 1 threat to the country. Expected a sensitive movie, but turned out to be more of a action flick with a weak plot & horrible songs. Chittagong was a sincere effort and I liked it, the story is pretty much true to life. So next movie to watch out is of course Skyfall as James Bond returns to duty !

Ciao n Peace.

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