My DM Story
I am transferred to the Documentation department for coupla days now. Not much mind scratching work here. Just need to document software prepared by the company.
Right now , I am not too busy , so thought of writing my DM case history. It would be helpful to me , if i forget about the case history EVER!. The thing is , I might have lost the med case history papers. Or will have to search it at my parents place. So thought of jotting down whatever I remember. Here goes...
Worst phase :
Between February-March 9 I was suffering from stomach upsets , vommiting n had grown weak. None of my docs could diagnose a particular disease. On 10 March I had severe convulsions and I slipped into a semi conscious state. On 16 March according to my docs my situation grew very serious. Had servere convulsions. For about a week I was in a coma. Now I dont remember the exact date , but around 28 I recovered from the coma. Till then I had not been diagnosed as a DM patient.
Getting diagnosed with DM :
When I recovered from the coma , I thought the worst was behind me. I couldnt see anything or walk after my recovery. Slowly I began to improve. By 15-25 April I think I started to walk some distance. Soon I was discharged. But within few days , my condition worsened. It so happened that my doc was out of town. So I had to take medical opinion of a neurologist.
He had me admitted to a hostpital. I was put on a tube , coz I couldn't eat anything , I used to spit my saliva out , coz I couldn't swallow it sometimes!! I was in a real bad shape then. Lot of muscle wasting all around. Then I underwent muscle, skin biopsy. The doc then diagnosed me with Dermatomyositis. I was put on a high steriod dosage , through IV for first couple of days. I never knew I would have to take that awful bitter prednisone for next coupla years !! It was really bad. Made me sweat like crazy n the other side effects I came to know , wayyy later. Awful drug anyone would say. But it helped me restore my muscle power , slowly got my eyesight back.
By the time I was discharged from the hospital , it was june. Just before that they put me on a gastro tube since it had been 2 months since i had that tube through nose/mouth. They puncured the abdomen area n put through the tube. They told me that it was hygenic , n could be put there for more days than the nose tube.
Some improvement atlast!! :Soon it was July, we were looking for a physio therapist , coz my situation had hardly improved. I still couldn't lift my neck ,couldnt get up n sit on my own. Forget the other routines. My family took great care n I can never forget that time. Just reminds me how much one can love n take care of a person.
Anyways coming back to the physio therapy issue, I did get an awesome phyiotherapist. Later on she became sort of a Mentor for me. Within few weeks she made me sit on my own , which was a great achievement then!! Soon she made me independent of others. I am thankful to her to this day. Without her help I wouldn't have gone this far.
Yet another diagnosis :PSoon it was october...I had not started walking yet. It didn't concern me much , coz my other muscles were developing by a great deal. The only concern then was a low grade fever that I had for like 15-20 days. Soon my family thought there was a need to change my doc. Coz it had been a month since I was getting low grade fever in the evenings.
My new doc was a rheumatologist. He started me with a medicine , that stopped the fever immediately.(dont remember the name now ,will have to look into old prescriptions).
I had to take a liver biopsy. The liver biopsy couldn't prove what he was hoping to diagnose me for.
It was a disease called CytoMagello Virus(CMV)!! . Anyways it didn't affect me much. In my mind I stuck with the DM diagnosis. Since he had hardly changed my medication ,just the pill for the fever, I dint care.
My Great Recovery :Now every patient goes through this 'great speedy recovery' stage. I too went through it. In the first week of december. I walked with the help of walking splints. These were attached to my legs , holding them , giving support so I could walk on my own. I walked for the first time in 6-7 months!! Never felt better. Soon I had that 'speedy recovery'. A month before my school days were goin to restart , I visited my school for the first time after an year. I missed one year of education. Dint affect me much. Was bit worried though coz I couldnt walk on my own . Needed support now and then. But those worries vanished , as soon as school started , I improved a lot . I could walk on my own. I used the elevators coz my class was on the third floor. There wasn't anything much of note those days that I can write about. Nothing serious or different. Same old stuff. First few months of school I enjoyed the most.
I might be the only student in my class then who enjoyed attending school , lectures :) I used to attend all the lectures even during exam time, when most of the class used to bunk lectures. My grades were pretty good. I completed my school course in 2000 with awesome grades,marks.
My college Days :I enrolled myself for an Information Technology course later. I couldn't do engineering studies , cause the practicals were too much of a strain. My college days were great. I got my driving license in 2002 when I turned 18!! That was a great moment of my life coz I love driving cars. I graduated in 2005. Now I am pursuing a post graduation computer applications course.
During my college days , the only problem I had was that I was diagnosed with optic nerve atrophy in 2005. I can't see with my right eye. Can make out shapes,colours nall . But can't read anything not even the big letters!!
That was a bit of a let down. But other than that life has been too good. Awesome in my words!
My driving still continues...though I do play outdoor games like cricket,volley ball, soccer I'm not too good in those. Get beaten by most of my fellow friends !:P It's not that I cant run or react fast enough. It's just because I cant see with my right eye n have ot depend on my left eye too much.
But still I enjoy spending time playing such games than sitting at home n watching movies n reading books.
So thats it. That was my DM story . This has been a long post I guess. I was wary of blogging earlier , dunno but it helps in some way!! Oof enough of this for now, Gtg. Reading all these things reminds me of a book I read before 'Tough times never last , but tough people Do!'
Ciao n Peace.
Right now , I am not too busy , so thought of writing my DM case history. It would be helpful to me , if i forget about the case history EVER!. The thing is , I might have lost the med case history papers. Or will have to search it at my parents place. So thought of jotting down whatever I remember. Here goes...
Worst phase :
Between February-March 9 I was suffering from stomach upsets , vommiting n had grown weak. None of my docs could diagnose a particular disease. On 10 March I had severe convulsions and I slipped into a semi conscious state. On 16 March according to my docs my situation grew very serious. Had servere convulsions. For about a week I was in a coma. Now I dont remember the exact date , but around 28 I recovered from the coma. Till then I had not been diagnosed as a DM patient.
Getting diagnosed with DM :
When I recovered from the coma , I thought the worst was behind me. I couldnt see anything or walk after my recovery. Slowly I began to improve. By 15-25 April I think I started to walk some distance. Soon I was discharged. But within few days , my condition worsened. It so happened that my doc was out of town. So I had to take medical opinion of a neurologist.
He had me admitted to a hostpital. I was put on a tube , coz I couldn't eat anything , I used to spit my saliva out , coz I couldn't swallow it sometimes!! I was in a real bad shape then. Lot of muscle wasting all around. Then I underwent muscle, skin biopsy. The doc then diagnosed me with Dermatomyositis. I was put on a high steriod dosage , through IV for first couple of days. I never knew I would have to take that awful bitter prednisone for next coupla years !! It was really bad. Made me sweat like crazy n the other side effects I came to know , wayyy later. Awful drug anyone would say. But it helped me restore my muscle power , slowly got my eyesight back.
By the time I was discharged from the hospital , it was june. Just before that they put me on a gastro tube since it had been 2 months since i had that tube through nose/mouth. They puncured the abdomen area n put through the tube. They told me that it was hygenic , n could be put there for more days than the nose tube.
Some improvement atlast!! :Soon it was July, we were looking for a physio therapist , coz my situation had hardly improved. I still couldn't lift my neck ,couldnt get up n sit on my own. Forget the other routines. My family took great care n I can never forget that time. Just reminds me how much one can love n take care of a person.
Anyways coming back to the physio therapy issue, I did get an awesome phyiotherapist. Later on she became sort of a Mentor for me. Within few weeks she made me sit on my own , which was a great achievement then!! Soon she made me independent of others. I am thankful to her to this day. Without her help I wouldn't have gone this far.
Yet another diagnosis :PSoon it was october...I had not started walking yet. It didn't concern me much , coz my other muscles were developing by a great deal. The only concern then was a low grade fever that I had for like 15-20 days. Soon my family thought there was a need to change my doc. Coz it had been a month since I was getting low grade fever in the evenings.
My new doc was a rheumatologist. He started me with a medicine , that stopped the fever immediately.(dont remember the name now ,will have to look into old prescriptions).
I had to take a liver biopsy. The liver biopsy couldn't prove what he was hoping to diagnose me for.
It was a disease called CytoMagello Virus(CMV)!! . Anyways it didn't affect me much. In my mind I stuck with the DM diagnosis. Since he had hardly changed my medication ,just the pill for the fever, I dint care.
My Great Recovery :Now every patient goes through this 'great speedy recovery' stage. I too went through it. In the first week of december. I walked with the help of walking splints. These were attached to my legs , holding them , giving support so I could walk on my own. I walked for the first time in 6-7 months!! Never felt better. Soon I had that 'speedy recovery'. A month before my school days were goin to restart , I visited my school for the first time after an year. I missed one year of education. Dint affect me much. Was bit worried though coz I couldnt walk on my own . Needed support now and then. But those worries vanished , as soon as school started , I improved a lot . I could walk on my own. I used the elevators coz my class was on the third floor. There wasn't anything much of note those days that I can write about. Nothing serious or different. Same old stuff. First few months of school I enjoyed the most.
I might be the only student in my class then who enjoyed attending school , lectures :) I used to attend all the lectures even during exam time, when most of the class used to bunk lectures. My grades were pretty good. I completed my school course in 2000 with awesome grades,marks.
My college Days :I enrolled myself for an Information Technology course later. I couldn't do engineering studies , cause the practicals were too much of a strain. My college days were great. I got my driving license in 2002 when I turned 18!! That was a great moment of my life coz I love driving cars. I graduated in 2005. Now I am pursuing a post graduation computer applications course.
During my college days , the only problem I had was that I was diagnosed with optic nerve atrophy in 2005. I can't see with my right eye. Can make out shapes,colours nall . But can't read anything not even the big letters!!
That was a bit of a let down. But other than that life has been too good. Awesome in my words!
My driving still continues...though I do play outdoor games like cricket,volley ball, soccer I'm not too good in those. Get beaten by most of my fellow friends !:P It's not that I cant run or react fast enough. It's just because I cant see with my right eye n have ot depend on my left eye too much.
But still I enjoy spending time playing such games than sitting at home n watching movies n reading books.
So thats it. That was my DM story . This has been a long post I guess. I was wary of blogging earlier , dunno but it helps in some way!! Oof enough of this for now, Gtg. Reading all these things reminds me of a book I read before 'Tough times never last , but tough people Do!'
Ciao n Peace.
posted by Prasad @ 1:50 AM
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