Rush of blood to the heart
Just read some posts on the DM support group boards. Its so touching, people all over the world bond as if they have been living in the same neighborhood since very long time. Such a big help when others can relate to some of your experiences in every day life. Wish such wonderful communities are available for all people who are experiencing such other rare conditions. Life with conditions like DM becomes so different. Mostly others feel , DM people are having just a bad day. Also explaining skin conditions becomes lil embarrassing.
I am bit lucky , that after one year of inactivity I was able to do all normal stuff after that one year. Although the skin condition is variant. Some days its pretty okay. But the problem starts when you go out, its always sunny n soo hot out here. Traveling by train & bus becomes such an exhausting task. Wearing long shirts becomes necessary (for me) because of the calcinosis. Else I have seen people on the train staring at my elbows. When I'm trying hard not to lose my balance by clutching to those train handles.
Anyhow coming back to the boards topic. There was a post on dating. Flooding memories came back :-| I've never said no to dating. I like to hang out. But anything more and I'm much more worried about heart break n other issues related to r'ships. It becomes too stressful. As if we don't have enough on our plates already! Time with N was always good, really miss those times. But then there are ups & downs in a relationship. I wasn't too sure if I could handle that after parting ways.
Also have noticed that most people on boards are middle age, n so are either settled or single. So prolly no one has to deal with dating as such. Very interesting topic though. Dm is not just about muscle weakness, there is a lot of skin involvement. Often, we dont feel the best bcoz of our looks. Spending morning/afternoon/evening at the beach can turn our faces to tomato red in no time. Also when you are not doing too well healthwise, you wont feel like hanging out at say a nightclub. So its quite bit difficult to date with dm , as you can see! But never the less, one can't stop living life the way you want to ,because of it. Me thinks "should live life to the fullest & not to hold back ANYTHING". Go go go!
Ciao n Peace.
I am bit lucky , that after one year of inactivity I was able to do all normal stuff after that one year. Although the skin condition is variant. Some days its pretty okay. But the problem starts when you go out, its always sunny n soo hot out here. Traveling by train & bus becomes such an exhausting task. Wearing long shirts becomes necessary (for me) because of the calcinosis. Else I have seen people on the train staring at my elbows. When I'm trying hard not to lose my balance by clutching to those train handles.
Anyhow coming back to the boards topic. There was a post on dating. Flooding memories came back :-| I've never said no to dating. I like to hang out. But anything more and I'm much more worried about heart break n other issues related to r'ships. It becomes too stressful. As if we don't have enough on our plates already! Time with N was always good, really miss those times. But then there are ups & downs in a relationship. I wasn't too sure if I could handle that after parting ways.
Also have noticed that most people on boards are middle age, n so are either settled or single. So prolly no one has to deal with dating as such. Very interesting topic though. Dm is not just about muscle weakness, there is a lot of skin involvement. Often, we dont feel the best bcoz of our looks. Spending morning/afternoon/evening at the beach can turn our faces to tomato red in no time. Also when you are not doing too well healthwise, you wont feel like hanging out at say a nightclub. So its quite bit difficult to date with dm , as you can see! But never the less, one can't stop living life the way you want to ,because of it. Me thinks "should live life to the fullest & not to hold back ANYTHING". Go go go!
Ciao n Peace.
posted by Prasad @ 3:20 PM
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